Local support groups

• Bristol Area Downs Syndrome Support
• Hop Skip and Jump South West - a special needs centre.
• St Peters Hospice

National websites for medical conditions - Note that many of these organisations will be able to put you in touch with local groups

• Association for Spina Bifida & Hydrocephalus  
• Barnardo's Castle Project - renal disease support and services
• The Bobath Centre for Children with Cerebral Palsy
• British Deaf Association       
• British Dyslexia Association      
• British Epilepsy Association   
• British Heart Foundation         
• British Institute for Brain Injured Children       
• British Lung Foundation       
• Brittle Bone Society       
• Changing Faces    
• Child Bereavement Trust   
• Children's Liver Disease Foundation      
• Cystic Fibrosis Trust
• Deafblind UK 
• Down Syndrome Educational Trust   
• Downs Syndrome Association
• Family Centre for Deaf Children
• Gastroschisis Exompholos Extrophies Parents Support Network (GEEPS).   
• Left Heart Matters (single ventricle heart condition)  
• Multiple Births Foundation
• Royal National Institute for Blind People       
• SCOPE for People with Cerebral Palsy   
• Twins and Multiple Births Association (TAMBA)
• Unique - Syndromes without a name
• VACTERL Association support group
• The International Vasa Previa Foundation
  
  
  
  
  

National groups offering support

• ACT - children's palliative care
• Birth Defects Foundation
• BLISS - The Premature Baby Charity
• Childtime trust - counselling for children and families
• Cinnamon Trust - pet care for those in hospital
• Compassionate  Friends - befriending for bereaved parents
• Contact a Family 
• Family Fund
• Foundation for Conductive Education
• Harbour, The - free counselling   
• Home Farm Trust       
• Home-Start UK - help returning home
• La Leche League - breastfeeding support
• Marriage Care
• Mencap
• National Bereavement Helpline
• Patients' groups in UK       
• React - grants for special aids
• Stillbirth and Neonatal Death Society

National Authorities

• British Institute of Learning Disabilities       
• CAB - Citizen's Advice Bureau      
• Community Fund (New name for the National Lotteries Charities Board)
• Council For Disabled Children
• Department Of Health
• Department Of Social Security
• NHS Direct  

Local Authorities and advice

• Barton Hill Advice Service    
• Bath & NES Council   
• Bristol City Council       
• North Somerset Council       
• South Glos Council